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Introducing IDDT – the InDependent Diabetes Trust.

Introducing IDDT

By introducingIDDT, Latest News

We are an organisation for people living with diabetes run by people living with diabetes. We recognise that when one person in a family lives with diabetes, this affects other family members and we offer support to partners and parents. We raise awareness of important issues for people with diabetes and provide information in non-medical language.

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A charity based in the UK listening to people with diabetes and their carers and supporting their needs. The Trust is run entirely by voluntary donations and we do not accept funding from the pharmaceutical industry in order to remain uninfluenced and independent.

The Insulin Dependent Diabetes Trust (IDDT) is a registered charity and was formed in 1994. We are concerned with listening to the needs of people who live with diabetes, understanding those needs and doing our utmost to offer help and support. We not only want to help those who actually have diabetes but also their carers – the husbands, wives, partners and parents, indeed, all of us who ‘live with diabetes’. We recognise that when one person in a family has diabetes, all other family members are affected to a greater or lesser extent and they all have views and needs which may be different from the person with diabetes, but nevertheless are important.

The Trust was set up to look at some of the day to day difficulties of living with diabetes, the worries, fears and concerns that perhaps we don’t talk about at the hospital clinic- the ones that many of us experience and understand because we actually live with diabetes. As a charity, IDDT has a Board of Trustees and all our Trustees either have diabetes or have family members with diabetes. So we all know first hand that while diabetes doesn’t rule our lives, it is an important part of them. It needs care and attention, it can be a nuisance and it is not without it’s problems!

NICE recommends life changing technology is rolled out to people with type 1 diabetes

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NICE recommends life changing technology is rolled out to people with type 1 diabetes
An announcement of the recommendations was made on 7 November 2023 at NICE’s annual conference in Manchester by NICE chief executive Dr Sam Roberts.

Thousands of people with type 1 diabetes could be offered wearable technology to help them manage their condition following the publication of final draft guidance by NICE.

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New Leaflet: Diet and Diabetes

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This new booklet is designed to help you through some of the confusing and complicated aspects of diet and the reasons why, what, and how much we eat are so important for people with Type 1 or Type 2 diabetes. It provides you with information about various diets, food labelling, weight loss, the importance of food groups and much more.

Please click here to find out more.

Semaglutide for early onset Type 1 diabetes – but a very small study…

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Semaglutide for early onset Type 1 diabetes – but a very small study…
In a small study involving only 10 people, semaglutide, a Type 2 drug, was given to people with Type 1 diabetes soon after the diagnosis. This led to no need for mealtime insulin in all patients and no need for basal insulin in most, along with improved glycaemic control. (The New England Journal of Medicine. September 2023)

Before building up our hopes, we have to recognise that this is a very small study and a much larger study is needed. In addition, we have to question whether there could be adverse effects.

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NHS rolls out world-first programme to transform diabetes care for under 40s ‘T2Day: Type 2 Diabetes in the Young’

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NHS Press Release, 29th August 2023
UK Stakeholder | Press Releases | NHS England | 29 August 2023

Tens of thousands of people in England living with early onset type 2 diabetes will benefit from more intensive and targeted care, thanks to a world-first initiative being rolled out by the NHS.

Around 140,000 people aged 18 to 39 years old will receive additional tailored health checks from healthcare staff, and support with diabetes management, such as blood sugar level control, weight management and cardiovascular risk minimisation.

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Ukraine – Insulin and Diabetes Supplies Urgently Needed IDDT Appeal for Help

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The deepening crisis in Ukraine means that there is an increasingly desperate need to help people trying to live with diabetes. It is hard to believe that not only are the people of Ukraine having to fight for their country and freedom, but they also are in desperate need all their diabetes supplies. As the bombing continues, pharmacies close, hospitals run out of supplies and supply routes targeted.

 

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Free life-changing technology for people with Type 1 diabetes

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NHS patients in England with Type 1 diabetes are now eligible for a free continuous glucose monitor (CGM) after the health service secured a new ‘cost-effective’ deal.

Earlier this year, the NHS announced it would rollout CGM technology to everyone living with Type 1 diabetes as part of its ‘Long Term Plan’ to deliver world-class healthcare. Now a deal between the NHS and manufacturer DEXCOM means a CGM called the Dexcom ONE Real Time-Continuous Glucose Monitoring will soon be available on prescription to people with Type 1 diabetes.

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NICE update recommendations for continuous glucose monitoring (CGM) and flash monitoring (Freestyle Libre) – now available for all people with Type 1 diabetes and people with Type 2 diabetes using insulin

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More than 250,000 people living with type 1 diabetes are set to be offered new technology to help them manage their condition and at the same time reduce the need for finger prick testing by up to 50%, following new advice from NICE. New guidance from NICE has recommended the use of real-time continuous glucose monitoring (rtCGM) for adults and children living with type 1 diabetes for the first time. It will give them a continuous stream of real-time information on a smartphone about their current blood glucose level.

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New research breakthrough in Type 1 diabetes

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An article in The New York Times on December 3rd made headlines that are especially important for people living with Type 1 diabetes. It announced that Brian Shelton from Ohio had been cured of Type 1 diabetes. Curing Type 1 requires a renewable source of beta cells that can be produced in the laboratory. Once placed into the body, they need to restore insulin production and automatically regulate blood-glucose levels.

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“Scotland to rollout diabetes test for Type 1 patients”

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This was a headline in November 2021 along with the statement that “Misdiagnosed Type 1 diabetes patients could be freed from the need to take insulin after a new test is rolled out.”

Scotland will become the first country to offer the C-peptide blood test to all patients who have had a Type 1 diagnosis for at least three years. The test became available from 1st November 2021 in Scotland.

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First ever injection pen recycling pilot launched in UK pharmacies

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Novo Nordisk has launched the PenCycle scheme to enable people to recycle their pre-filled FlexPen and FlexTouch devices by returning them to participating pharmacies or through pre-paid Royal Mail boxes which hold up to 12 used pens (with the needles removed).

This system, called PenCycle, started on 1st November 2021 and is being run in partnership with Alliance Healthcare, Lloyds Pharmacy, the National Pharmacy Association (NPA) and Royal Mail. It will be piloted in 13 clinical commissioning groups in Greater Manchester and Leicestershire and Rutland and in the Greater Glasgow and Clyde health board, ahead of a planned national rollout in 2022. The scheme is thought to be the first of its kind in the UK.

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InDependent Diabetes Trust