IDDT Privacy Policy

  1. Introduction & General Terms

IDDT is committed to protecting your personal information when you are using our services. We want our services to be safe and enjoyable environments for our members and visitors. This Privacy Policy relates to our use of any personal information you choose to share with us when using our website or by you contacting IDDT by any other means.
Our Privacy Policy explains the following:

  • What information we collect about you;
  • How we use your details to contact you;
  • Whether we will disclose your details to anyone else;
  • Your choices regarding the personal information you provide to us;
  • The use of cookies on our website and how you can reject these cookies.

IDDT is committed to safeguarding your personal information. Whenever you provide such information, we are legally obliged to use your information in line with all laws concerning the protection of personal information, including the Data Protection Act 1998 and the European General Data Protection Regulation (DPA 2018/GDPR) (these laws are referred to collectively in this Privacy Policy as the “data protection laws”).

The IDDT website contains hyperlinks to websites owned and operated by third parties. These third-party websites have their own privacy policies, and are also likely to use cookies, and we therefore urge you to review each of them. We do not accept any responsibility or liability for the privacy practices of such third-party websites and your use of such websites is at your own risk.

  1. Who Are We?

The Insulin Dependent Diabetes Trust (IDDT) is a person-centred organisation. It is run by people who live with diabetes for people who live with diabetes, so we understand some of the day to day and long-term difficulties that occur. IDDT has a small staff team who work closely together and are deeply committed to ensuring that IDDT helps and supports people with diabetes and their families. They are all trained in GDPR requirements.

The staff roles are as follows:
Chief Executive Officer
Database Manager
Senior Database Administrator
Database Administrator
Executive Support Officer

IDDT was formed in 1994 and is based in Northampton in the United Kingdom. It originally formed to try to ensure that there was recognition that some people have adverse effects when using genetically modified (GM) human insulins and that the choice of animal insulin must remain available. IDDT’s core belief is that everyone with diabetes should have an informed choice of treatment and they should be equal partners with their healthcare professionals in decisions about their care and treatment.

As a result of increased requests for information from people with Type 2 diabetes treated with diet or diet and tablets. IDDT also provides information and support to this group of people.
IDDT is a registered charity and is governed by a Board of Trustees and relevant legislation.

  1. What information will IDDT collect about me?

When you participate in, access or sign up to any of IDDT’s services, activities or online content, such as Join IDDT, ordering booklets or purchasing from the IDDT Shop, we may receive personal information about you. This can consist of information such as your name, title, gender, email address, postal address, telephone or mobile number, depending on the activity.

By submitting your details, you enable IDDT to provide you with the services, activities or online content that you select.

You can withdraw your consent at any time where we are relying on consent to process your personal data but this will not affect the lawfulness of any processing carried out before you withdraw your consent. If you withdraw your consent, we may not be able to provide certain products or services to you and we will advise you if this is the case.

Financial details include bank account when necessary e.g. Lottery and minimum details of credit and debit cards. These will be kept securely as long as deemed necessary and in accordance with our financial obligations.

Special Category Information
We may collect Special Category Information about you in so much as it relates to your health. You may provide us with information about yourself that is classed as sensitive personal data, which is not shared by any third parties.  

You may provide us with details of your health if you choose to share your experiences of living with diabetes. We only hold sensitive information on our database if you have given clear permission to do so. You can ask us to delete this at any time.

Cookies – IDDT also uses cookies (see the cookies section below for details) and collects IP addresses (an IP address is a number that can uniquely identify a specific computer or other network device on the internet) from visitors to our website.

  1. How will IDDT use the information it collects about me?

IDDT uses personal information that you have sent us or provided when filling in a form – for example, when joining IDDT or purchasing from the IDDT Shop – in order to provide you with a service. This information is kept confidential, and is only used:

  • For the purpose of providing the services you request.
  • Where it is necessary for our legitimate interests.
  • Where we need to comply with a legal obligation.

The information provided is used for sending IDDT’s free quarterly publications – the Newsletter and Type 2 & You.

Although they are information bulletins, the Newsletter and Type 2 & You, under DPA 2018/GDPR criteria, these free publications may fall within the definition of marketing. You will receive marketing communications from us if you have requested information from us or purchased goods or services from us and you have not opted out of receiving that marketing.

We will never share your personal data with any third party for marketing purposes. You can ask us to stop sending you marketing messages at any time.

  1. Data retention

How long will IDDT keep my personal information?
Where you contribute material to IDDT, we will generally only keep your content for as long as is reasonably required for the purpose(s) for which it was submitted.
We will hold your personal information on our systems as long as is reasonably necessary to fulfil the purposes we collected it for, including the purposes of satisfying any legal, regulatory, tax, accounting or reporting requirements.

To determine the appropriate retention period for personal data, we consider the following:

  • potential risk of harm from unauthorised use or disclosure amount, nature and sensitivity of the personal data,
  • the purposes for which we process your personal data and whether we can achieve those purposes through other means,
  • the applicable legal, regulatory, tax, accounting or other requirements.
  1. Cookies Policy – Information IDDT collects from you

What is a cookie?
A cookie is a small piece of data, which often includes a unique identifier that is sent to your computer, tablet or mobile phone (referred to here as a “device”) browser from a website computer and is stored on your device’s hard drive. Each website can send its own cookie to your browser if your browser’s preference allows it, but (to protect your privacy) your browser only permits a website to access the cookies it has already sent to you, not the cookies sent to you by other websites. Many websites do this whenever a user visits their websites in order to track online traffic flows.

During the course of any visit to our website, the pages you see, along with a cookie, are downloaded to your device. We do not record personal information about you for marketing purposes, and we do not advertise on the IDDT website, cookies are only used to record anonymous information about your visit to the site, for analytical purposes.

We like to keep track of what pages and links are popular and which ones don’t get used so much to help us keep our sites relevant and up to date. It is also very useful to be able to identify trends of how people navigate (find their way through) our sites and if they get ‘error messages’ from web pages.

This group of cookies, often called ‘analytic cookies’, are used to gather this information. These cookies don’t collect information that will identify you. The information collected is anonymous and is grouped with the information from everyone else’s cookies. We can then see overall the patterns of usage rather than any one person’s activity. Analytic cookies only record activity on the site you are on and they are only used to improve how our website works.

Web browser cookies:
If you do not want to receive cookies, you can modify your browser so that it notifies you when cookies are sent to it or you can refuse cookies altogether. You can also delete cookies that have already been sent.
If you wish to restrict or block web browser cookies which are set on your device, then you can do this through your browser settings; the Help function within your browser should tell you how. Alternatively, you may wish to visit, which contains comprehensive information on how to do this in a wide variety of desktop browsers.

  1. Data Security

We have put in place stringent procedures to prevent your personal data from being accidentally lost, used or accessed in an unauthorised way, altered or disclosed. We have put in place stringent procedures to deal with any suspected personal data breach and will notify you and any applicable regulator of a breach where we are legally required to do so.

The Information Commissioner
You have the right to make a complaint at any time to the Information Commissioner’s office (ICO) for data protection issues ( However, we would appreciate the chance to deal with your concerns before you approach the ICO, so please contact us in the first instance.

Changes to the policy and your duty to inform us of changes
We keep our Privacy Policy under regular review.

It is important that the personal data we hold about you is accurate and current. Please keep us informed if your personal data changes during your relationship with us.

Implementation date: 09.07 2012
Review date:
Annual Review date: annually in February