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Stu

Introducing IDDT

By introducingIDDT, Latest News

We are an organisation for people living with diabetes run by people living with diabetes. We recognise that when one person in a family lives with diabetes, this affects other family members and we offer support to partners and parents. We raise awareness of important issues for people with diabetes and provide information in non-medical language. Read more…

Brexit

By Latest News

Medicines
Now that the BREXIT situation is clearer, well a little, the three main insulin manufacturers – Lilly, Novo Nordisk and Sanofi have confirmed that the previous arrangements are still in place. This means that they are keeping at least 16 weeks of additional stock. People should continue to get prescriptions and use their medicines in the normal way.

Pork insulin, which is made in the UK, will continue to be available as usual.

Devices
The government has said that the key medical technology companies have confirmed that they are in regular discussions with all the major companies who provide continuous glucose monitors (CGM), FreeStyle Libre, insulin pumps and blood glucose monitors and strips. The majority of tech companies have confirmed to the DHSC that they have alternative transport routes in place if disruption occurs and have built up buffer stocks.

During the 12-month implementation period, the UK will continue to stay aligned to EU law, and existing regulatory and customs procedures will remain in place. The government expect that supplies, including medicines and medical goods, will continue as usual.

Travel
If you are a UK national travelling to the EEA or Switzerland, you can continue to access healthcare as you do now until at least the end of the implementation period at the end of December 2020.

If you have an EHIC, this will be valid until the end of the implementation period.

 

New Ulcer treatment could prevent 3,000 amputations a year

By Latest News

Urgo MedicalUrgostart Is The Only Local Treatment Proven To Reduce The Healing Time Of Leg Ulcers And Diabetic Foot Ulcers

A unique interactive wound dressing for venous leg ulcers and diabetic foot ulcers that could prevent more than 3,000 diabetes-related amputations has been recommended by NICE (The National Institute for Health and Care Excellence), following a comprehensive review of ground-breaking clinical studies in addition to expert opinion and advice.

Click here to read more

 

FreeStyle availability update

By arch

Availability of FreeStyle sensors

Abbott, the manufacturers of the FreeStyle Libre, has announced it will increase the number of FreeSyle Libre sensors people can buy at one time from two to three at a time.

Customers will be limited to ordering once every 25 days and free postage will continue. This only affects people who buy the sensors privately and does not affect those who have the system prescribed on the NHS.

In addition, people who have been on the waiting list to buy the FreeStyle Libre since April 1st will be able to purchase the system in the “coming days” and they will receive an email invitation to purchase the system.

FreeStyle Libre availability update

By arch

Availability of FreeStyle sensors – update: 31st July

Abbott, the manufacturers of the FreeStyle Libre, has announced it will increase the number of FreeSyle Libre sensors people can buy at one time from two to three at a time.

Customers will be limited to ordering once every 25 days and free postage will continue. This only affects people who buy the sensors privately and does not affect those who have the system prescribed on the NHS.

In addition, people who have been on the waiting list to buy the FreeStyle Libre since April 1st will be able to purchase the system in the “coming days” and they will receive an email invitation to purchase the system.


FreeStyle Libre, IDDT issues press release
July 26th 2018

Low numbers prescribed “game-changing” diabetes technology

Results from Freedom of Information requests carried out by the InDependent Diabetes Trust (IDDT) show just 30 out of the 144 CCGs who responded have prescribed the system to just 174 people. In response to a question on which criteria decisions about prescribing the FreeStyle Libre system are made, 23 CCGs failed to provide any data.

These figures are at odds with stats provided by Diabetes UK which show 9,690 across Britain have been prescribed the technology since November, which is still a low proportion representing less than 2 per cent of the 500,000 eligible people.

To read the full press release click here

As a result of our press release, on July 26th the Daily Express made the FreeStyle libre postcode lottery a front-page story with the heading NHS DIABETES SCANDAL: 490,000 sufferers denied life-saving glucose monitor PM uses.
This can be found online: https://www.express.co.uk/news/uk/994343/nhs-postcode-lottery-denies-diabetes-patch-theresa-may-flash-glucose-monitor

Previous updates on this story appear below

We have had reports from people trying to purchase the FreeStyle Libre and the sensors from the manufacturers, Abbott Laboratories that there is a delay in supply. It appears that there is a 3-week delay in supply and a restriction of 2 sensors per order. This is said to be due to high demand, so hopefully it will be a temporary situation.

Update: 5th April

FreeStyle Libre not available to new customers

Abbott, the manufacturer of the FreeStyle Libre Flash Glucose Monitoring system has announced that they are not taking online orders from new customers until July 2018, due to unexpected demand. Therefore, people wishing to order the FreeStyle Libre for the first time will have to wait until July.

Abbott has also said that existing customers will be limited to ordering two sensors every 25 days. One sensor lasts 2 weeks.

Limiting the number of sensors does not apply to people who are obtaining the FreeStyle Libre free on an NHS prescription.

Leading experts slam current diabetes care in UK care homes – a Call to Action needed

By Latest News

Professor Alan Sinclair slam current diabetes care in UK care homes

Diabetes care in nursing homes still remains “fragmented” and urgent steps need to be taken to restore the “health and dignity” of older people, leading experts have said.

A review of multiple studies carried out across 25 years involving residents with diabetes has slammed care home provision saying that care homes “often do not meet national standards” of diabetes care and staff training is “patchy”. 

Lead author Professor Alan Sinclair, from the Foundation for Diabetes Research in Older People and University of Aston, said: “Our findings show the level of diabetes care remains fragmented which is quite worrying because figures suggest over a quarter of care home residents are believed to have the condition. Without proper management, it can lead to frailty, dependency, disability and reduced life expectancy.

Click here to read more

 

Talking meter removed

By Latest News

Talking meter removed

Meter for the visually impaired removed from the market
The SuperCheck2 blood glucose meter for visually impaired people has been withdrawn from the market by the manufacturer, Apollo Medical Technologies Ltd. This meter provided blood glucose readings through a voice system.

There is another glucose meter on the market to help visually impaired people with diabetes, the GlucoRx Nexus Voice Meter. This meter uses GlucoRx Nexus test strips and GlucoRx Nexus Lancets.

Freestyle Libre available on the NHS!

By arch

Freestyle Libra

On September 13th it was announced that the Freestyle Libre by Abbott will be available on the NHS from November 1st 2017 for people with Type 1 diabetes. This is a device which checks blood glucose levels by scanning a sensor worn on the back of the arm without having to prick the fingers, so non-invasively. Globally there are over 300,000 users and it is available in more than 35 countries. It is referred to as a flash glucose sensing device and is currently the only one in existence.

Click here to read more

 

InDependent Diabetes Trust
IDDT