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Introducing IDDT – the InDependent Diabetes Trust.

Introducing IDDT

By introducingIDDT, Latest News

We are an organisation for people living with diabetes run by people living with diabetes. We recognise that when one person in a family lives with diabetes, this affects other family members and we offer support to partners and parents. We raise awareness of important issues for people with diabetes and provide information in non-medical language.

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A charity based in the UK listening to people with diabetes and their carers and supporting their needs. The Trust is run entirely by voluntary donations and we do not accept funding from the pharmaceutical industry in order to remain uninfluenced and independent.

The Insulin Dependent Diabetes Trust (IDDT) is a registered charity and was formed in 1994. We are concerned with listening to the needs of people who live with diabetes, understanding those needs and doing our utmost to offer help and support. We not only want to help those who actually have diabetes but also their carers – the husbands, wives, partners and parents, indeed, all of us who ‘live with diabetes’. We recognise that when one person in a family has diabetes, all other family members are affected to a greater or lesser extent and they all have views and needs which may be different from the person with diabetes, but nevertheless are important.

The Trust was set up to look at some of the day to day difficulties of living with diabetes, the worries, fears and concerns that perhaps we don’t talk about at the hospital clinic- the ones that many of us experience and understand because we actually live with diabetes. As a charity, IDDT has a Board of Trustees and all our Trustees either have diabetes or have family members with diabetes. So we all know first hand that while diabetes doesn’t rule our lives, it is an important part of them. It needs care and attention, it can be a nuisance and it is not without it’s problems!

Fasting and Diabetes

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Fasting and DiabetesThis article looks at religious fasting and its impact on the management of diabetes during periods of abstinence and fasting. Two major religions, Islam and Christianity (many other religions also have fast periods), have periods of fasting around this time of year so, we will have a look at their fasting practices and then some of the general issues around diabetes and fasting. Many of you will have fasted before, so this article may be nothing more than a reminder, for those of you who have not, we hope it provides some helpful tips for staying safe and well during your fast.

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NICE recommends life changing technology is rolled out to people with type 1 diabetes

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NICE recommends life changing technology is rolled out to people with type 1 diabetes
An announcement of the recommendations was made on 7 November 2023 at NICE’s annual conference in Manchester by NICE chief executive Dr Sam Roberts.

Thousands of people with type 1 diabetes could be offered wearable technology to help them manage their condition following the publication of final draft guidance by NICE.

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2023 – From Our End of Year Newsletter

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2023 – From Our End of Year Newsletter

Shattering myths about Type 1 diabetes
2023 News Review

Shattering myths: Study reveals new insights on Type 1 diabetes and obesity link

Researchers have reviewed recent advancements in information about Type 1 diabetes and weight disorders. Their…
the need for support
2023 News Review

The need for support

During 2023 we learned that for many people who contacted IDDT, there is a great…
Hybrid closed loop systems
2023 News Review

NICE approve Hybrid closed loop systems for managing blood glucose levels in Type 1 diabetes

Update: Access to hybrid closed loop systems will be through a 5-year phased roll out…

IDDT is Charity of the Year

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With advice from IDDT and Orange Juice Communications, TMH Media Ltd ran our VERA campaign and were very pleased that it reached so many people living with diabetes.

So much so, that they made IDDT their Charity of the Year for 2023 and made a donation of £1,000 to our funds which they presented to Martin, IDDT’s CEO.

We would like to say how grateful we are for their expertise and help and of course, being made their Charity of the Year.

IDDT - Charity of the Year

Martin, CEO of IDDT accepts the cheque from Emma and Karen of TMH Media Ltd.

New Leaflet: Diet and Diabetes

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This new booklet is designed to help you through some of the confusing and complicated aspects of diet and the reasons why, what, and how much we eat are so important for people with Type 1 or Type 2 diabetes. It provides you with information about various diets, food labelling, weight loss, the importance of food groups and much more.

Please click here to find out more.

Semaglutide for early onset Type 1 diabetes – but a very small study…

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Semaglutide for early onset Type 1 diabetes – but a very small study…
In a small study involving only 10 people, semaglutide, a Type 2 drug, was given to people with Type 1 diabetes soon after the diagnosis. This led to no need for mealtime insulin in all patients and no need for basal insulin in most, along with improved glycaemic control. (The New England Journal of Medicine. September 2023)

Before building up our hopes, we have to recognise that this is a very small study and a much larger study is needed. In addition, we have to question whether there could be adverse effects.

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NHS rolls out world-first programme to transform diabetes care for under 40s ‘T2Day: Type 2 Diabetes in the Young’

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NHS Press Release, 29th August 2023
UK Stakeholder | Press Releases | NHS England | 29 August 2023

Tens of thousands of people in England living with early onset type 2 diabetes will benefit from more intensive and targeted care, thanks to a world-first initiative being rolled out by the NHS.

Around 140,000 people aged 18 to 39 years old will receive additional tailored health checks from healthcare staff, and support with diabetes management, such as blood sugar level control, weight management and cardiovascular risk minimisation.

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Ukraine – Insulin and Diabetes Supplies Urgently Needed IDDT Appeal for Help

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The deepening crisis in Ukraine means that there is an increasingly desperate need to help people trying to live with diabetes. It is hard to believe that not only are the people of Ukraine having to fight for their country and freedom, but they also are in desperate need all their diabetes supplies. As the bombing continues, pharmacies close, hospitals run out of supplies and supply routes targeted.

 

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Free life-changing technology for people with Type 1 diabetes

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NHS patients in England with Type 1 diabetes are now eligible for a free continuous glucose monitor (CGM) after the health service secured a new ‘cost-effective’ deal.

Earlier this year, the NHS announced it would rollout CGM technology to everyone living with Type 1 diabetes as part of its ‘Long Term Plan’ to deliver world-class healthcare. Now a deal between the NHS and manufacturer DEXCOM means a CGM called the Dexcom ONE Real Time-Continuous Glucose Monitoring will soon be available on prescription to people with Type 1 diabetes.

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NICE update recommendations for continuous glucose monitoring (CGM) and flash monitoring (Freestyle Libre) – now available for all people with Type 1 diabetes and people with Type 2 diabetes using insulin

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More than 250,000 people living with type 1 diabetes are set to be offered new technology to help them manage their condition and at the same time reduce the need for finger prick testing by up to 50%, following new advice from NICE. New guidance from NICE has recommended the use of real-time continuous glucose monitoring (rtCGM) for adults and children living with type 1 diabetes for the first time. It will give them a continuous stream of real-time information on a smartphone about their current blood glucose level.

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New research breakthrough in Type 1 diabetes

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An article in The New York Times on December 3rd made headlines that are especially important for people living with Type 1 diabetes. It announced that Brian Shelton from Ohio had been cured of Type 1 diabetes. Curing Type 1 requires a renewable source of beta cells that can be produced in the laboratory. Once placed into the body, they need to restore insulin production and automatically regulate blood-glucose levels.

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InDependent Diabetes Trust